YA Novel about Disability

A Guest Review and Interview with Ona Gritz, The Shape of Wings Author

THE SHAPE OF WINGS

Written by Ona Gritz

(West 44 Books; Available in Hardcover, Paperback, and eBook,
Ages 14-18/Grades 9-12)

 

The Shape of Wings cover.

 

 

GUEST REVIEW BY KAROL SILVERSTEIN:

Newly connected with her biological sisters (having hunted down her sperm donor-dad on Ancestry), C.C. is loving getting to know them. But when talk turns to sports and other physical activities they all enjoy, C.C. chooses not to share that she has cerebral palsy, enjoying the anonymity of the Zoom room. C.C.’s friend group—which includes bestie volleyball star Paige—is all non-disabled. In fact, the only other disabled person C.C. knows is a local woman who’s a wheelchair user. That changes when Jasmine comes to the library where C.C. works. C.C. instantly recognizes Jasmine’s altered gait and assumes, correctly, that Jasmine has CP too. Jasmine’s astonished that C.C. has no disabled friends and is unaware of the nearby Judy Heumann Center, a gathering place for disabled kids and teens that offers adaptive sports and other activities.

Jasmine takes C.C. under her wing, taking her to the Heumann Center and introducing her around. The experience proves to be a revelation for C.C., who begins spending most of her time with Jasmine and the other disabled teens she meets. She even begins a sweet romance with Lucas, who’s blind, and starts learning adaptive volleyball. Meanwhile, C.C.’s been blowing off her other friends, and Paige is hurt and confused by how unavailable C.C.’s been all summer. Like keeping her CP a secret from her sisters, C.C. hasn’t shared her new friends or her budding romance with Paige.

When C.C. does finally hang out with Paige and her old friend group, she meets Paige’s cute cousin Jack, who takes an interest in C.C. Longing to “test the waters” of attracting a non-disabled guy, C.C. allows herself to be swept up in his attention and they kiss a little on her front porch at the end of the night. She instantly regrets her betrayal of Lucas and intends to tell him what she’s done. But Jasmine saw her kissing Jack, and is furious. C.C. knows she needs to come clean with all the secrets she’s been keeping—from Paige, from her sisters and from Lucas. Somehow she needs to reconcile the fences she’s put up and then broken and to bring the separate parts of her world together.

Like author Ona Gritz’s previous book that introduced C.C., The Space You Left Behind, this new novel is a hard-to-put-down page turner. It explores the benefit of leaning into one’s disabled identity and the power of having a community that understands you in a way those who don’t share your experience might not. C.C. swings from a disabled teen with no disabled friends to one who shuts out and nearly loses her long-time, non-disabled friends. Obviously, finding a balance and communicating more openly with her old friend group is essential for C.C. Seeing C.C.’s eyes open to all the disabled community has to offer was a thrill. The Judy Heumann Center was practically in her backyard, yet she didn’t know about—or about the disability activism of the center’s namesake.

Able-bodied parents of disabled kids often think treating their child “just like any other kid,” deemphasizing their disabled identity, is doing them a service. But it can deprive these kids of the opportunity to appreciate a significant part of themselves and to connect with other kids like them—in addition to their non-disabled friends. The Shape Of Wings is a loving, honest look at one teen’s journey of discovery and revelation around a part of herself she had yet to embrace as unique and powerful.

 

A Q&A With Ona Gritz by Karol Silverstein:

Karol Silverstein: Books are like our children’s. What excites you most about your latest?

Ona Gritz: The Shape of Wings is, in many ways, a love letter to disability friendships and community. I’m excited to share the depth of those connections, the fun to be found there, and how affirming and essential it is for disabled kids to have that particular part of themselves valued and understood from the inside out.

 

KS: Did you always envision (or hope for) a sequel to The Space You Left Behind?

OG: Not long after I began writing The Space You Left Behind, I realized I wanted more time with these characters. When we meet CC, she’s at the absolute beginning of her journey toward self-acceptance as a young woman with cerebral palsy and, by the end, disability pride and community are possibilities she’s just beginning to envision for herself. She was definitely ahead of me at 16 in that respect, but I hoped for an opportunity to fully immerse her in that world.

 

KS: Jasmine’s family leaned into her disability early on, connecting with the disability community and making sure she knew other disabled kids. CC’s parents did not. Which side of that coin landed face up for you growing up?

OG: Unfortunately, my family fell on CC’s side of that coin. I was the only disabled kid in my friend group growing up. As a result, I had no sense of disabled identity and tended to see myself as clumsy and lesser than because of the way my body moved and the physical things I couldn’t do. When I finally met my first disabled friend at 25, we had an immediate and breathless finish-each-other’s-sentences kind of connection. Soon after, I asked my mom why she didn’t seek out other families with disabled kids when I was small. She said it had never occurred to her.

 

KS: What’s your message to misguided disability allies—the “I don’t think of you as disabled” folks?

OG: That it’s not the compliment they think it is. Words like that not only discount our experiences and identity, but communicate a belief that disability is necessarily and solely a negative.

 

KS: Scoops seems like a fun place. What’s your go-to ice cream parlor order?

OG: Assuming they carry gelato, vanilla stracciatella.

 

KS: What books, shows, movies or music have you encountered recently that blew you away? Why?

OG: For books, Roxie in Color by Stacy Cervenka and Diane Debrovner is a unique and compelling story of a sighted 7 th grader with blind parents. My husband is blind, and the book felt authentic and true to our experience. It also happens to be a real page-turner. Another MG novel I loved was The Moon Without Stars by Chanel Miller. There’s something so fresh and surprising about Miller’s voice. She, and therefore her characters, have such a poetic and empathetic way of viewing the world. This is a book about books, friendship, and peer pressure that’s both heartbreaking and hopeful. I also can’t say enough good things about Against Breaking: On the Power of Poetry by Ada Limón. It’s a lyrical and inspiring treatise on the importance of poetry. As a poet and verse novelist, I return to it often for inspiration. A movie I was especially charmed by this year was Eternity. It offers a wonderfully quirky and imaginative version of the afterlife, plus it has a lot of heart. And since we’re KidLit people, I’ll add that I absolutely love the film adaptation of Are You There God? It’s Me, Margaret. It was my first-ever favorite book, and I thought it was beautifully translated to film. Shows I’ve loved recently are Hacks, Shrinking, and All Creatures Great and Small. What all three share in common are dimensional and irresistible characters.

Author Ona Gritz photocredit Wendy Setzer
Ona Gritz, Photo Credit: Wendy Setzer.

AUTHOR BIO:

Ona Gritz holds a master of arts in poetry from the creative writing program at New York University. She is the author of the hi/lo young adult verse novels Take a Sad Song, a Kirkus Reviews’ best YA title; The Space You Left Behind, a Children’s Book Council Disability Pride Month Recommended Read; and its brand-new sequel, The Shape of Wings, a Junior Library Guild Gold Standard Selection. Her books for middle grade readers include If You Find This Letter, recently featured in People Magazine for Disability Pride Month, and August Or Forever, a Reader’s Choice and Wishing Shelf finalist in middle grade fiction. She also writes poetry and nonfiction for adults.
Find out more at her website: www.onagritz.com.

Author socials:

Instagram: https://www.instagram.com/onagritz/
Facebook: https://www.facebook.com/profile.php?id=61557125428404

Buy the book: Children’s Book World, Haverford, PA for signed copies, or Bookshop.org.

REVIEWER BIO:

Karol Ruth Silverstein (she/her/disabled) is an award-winning children’s book author. She’s
represented by Abigail Samoun at Red Fox Literary and lives in West Hollywood, California, with
two unmanageably fluffy cats. Check out www.karolruthsilverstein.com for more info.

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Young Adult Book Review – Joined at the Joints by Marissa Eller

JOINED AT THE JOINTS

Written by Marissa Eller

(Holiday House; $19.99, Ages 14 and up) 

 

Joined at the Joints cover boy and girl teens sitting back-to-back.

 

 

Once again, it’s a delight to have guest reviewer and author, Karol Silverstein, back to share her thoughts on Joined at the Joints, a young adult novel that resonated with her.

 

REVIEW:

At 17, Ivy’s great love is baking, and she’s more than content to spend her summer elbow-deep in her project to convert all of her beloved grandmother’s recipes to gluten-free since her older sister Caroline has Celiac disease. Having been diagnosed with juvenile arthritis a couple of years earlier, she shares living with a chronic illness with both her sister and her mom, who has Lupus. Also managing significant social anxiety is just the gluten-free icing on Ivy’s cake

At Caroline’s urging, she reluctantly attends a support group for teens with chronic illness and meets Grant, who shares her arthritis diagnosis, setting off an infestation of butterflies in Ivy’s stomach. Regardless of her attempts to deny what she’s feeling, Ivy falls for Grant—hard. He’s gorgeous, sweet, funny, and understands the pain and uncertainty she faces on a daily basis like no one else she’s ever met.

Her planned summer of carefree baking now includes navigating her first romantic relationship and a flare in her arthritis that becomes too severe for her to ignore. Her senior year of high school brings a new doctor and treatment, awkward conversations about birth control (since her new medication would cause harm to a pregnancy), and the chance to reconcile with her former best friend who Ivy kept in the dark about her arthritis diagnosis.

Joined at the Joints is both a typical YA romance and revolutionary. Most contemporary realistic YAs feature a teen who falls in love while dealing with the traditional trappings of teen life … plus. The plus can be academic pressures, family drama, a specific sought-after goal, etc. In Joined at the Joints, Ivy’s plus is her chronic illnesses. This isn’t a diagnosis story, specifically focused on coming to terms with a dramatic health shift. It’s more “season 2” in Ivy’s life, and therein lies the revolution. Guess what? Sick kids fall in love, too. Diagnosis stories will always be essential and necessary parts of the disability and chronic illness representation canon. But so, too, will be telling stories beyond that initial jolt, and that’s exactly what author Marrisa Eller has done here. She shows us how a teen with social anxiety, chronic pain, and fatigue can fall in love, begin dating, and handle all the awkward complications that come with that experience. Eller makes you root for Ivy and Grant without ever sugar-coating their challenges. Engrossing, sexy, and fun, Joined at the Joints is a must-read YA romance that’s both typical and revolutionary.

I would be remiss to complete this review without mentioning the book’s cover—which is also revolutionary. The illustration shows two teens sitting back-to-back in a pretty outdoor setting, shyly (almost) holding hands. And it’s their hands that drew my attention right away as both kids are wearing wrist braces, commonly prescribed for those with arthritis. The illustrator, Fevik, even went a step further in depicting a realistic image by featuring two different types of braces! The story never even mentions the braces but any kid with arthritis knows them well—and knows how awkward and embarrassing wearing them in public can be. This cover clearly lets readers know that the story is a romance. The wrist braces, for those who spot them, let readers know a romance story can and should include teens with health issues. I can’t begin to imagine how impactful having a book like this—with a cover like this—might have been for me when I was thirteen and newly diagnosed with juvenile arthritis.

  • Reviewed by Karol Silverstein

 

BUY THE  BOOK:

Special purchase link – Bookmarks (signed copies available):

https://www.bookmarksnc.org/book/9780823456215

 

Photo courtesy of Marissa Eller
Author Photo courtesy of Marissa Eller

BRIEF AUTHOR BIO:

Marissa Eller is a novelist with chronic pain and an abundance of emotions. She holds a BA in English from the University of North Carolina at Pembroke and an MFA in Writing from Lindenwood University, which she uses in her work as an academic consultant. She resides in Hickory, North Carolina, with her family and two rescue cats, all of whom she couldn’t love more if she tried. When not writing, reading, or helping students, she can be found thinking entirely too much about her favorite TV shows, obsessing over a band she’s loved since she was fifteen, or enjoying an afternoon nap.

Find Marissa here:

https://marissaeller.com/

https://twitter.com/marissaeller

https://www.instagram.com/themarissae/

 

BRIEF REVIEWER BIO:

Karol Ruth Silverstein (she/her/disabled) is an award-winning children’s book author and longtime SCBWI member. Her debut young adult novel, Cursed (Charlesbridge Teen, 2019), was loosely drawn from her experience of being diagnosed with juvenile arthritis at thirteen and won the Schneider Family Book Award in 2020. Originally from Philadelphia, Karol now lives in West Hollywood, California, with two unmanageably fluffy cats.

 

Find illustrator Fevik here:

https://www.instagram.com/fevik.studio/

 

 

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Young Adult Novel Review – Cursed by Karol Ruth Silverstein

CURSED
by Karol Ruth Silverstein
(Charlesbridge Teen; $17.99, Ages 12 and up)

 

Cursed Book Cover

 

I loved Cursed, the debut YA novel by Karol Ruth Silverstein, even before I read it because the cover spoke to me, and was perfect. Now, having finished the book, I can confirm how well this cover works. Its dual-meaning title presented in a bold red printer’s-block-style lettering, the warning on the bottom, along with the emojis capture the entire essence of the story. I think you’ll agree once you’ve read Cursed, too.

When I attended the book launch and heard Karol read from the opening chapter I couldn’t wait to find a chunk of time to finally read the novel undisturbed. In so many ways this is Karol’s story, an #ownvoices novel not only in that Karol authored it, but she has also lived with the chronic illness she writes about honestly and creatively using spot on “sarcasm, and bouts of profanity” that you will sorely miss when the novel ends. To give you an idea of what to expect, Karol recently tweeted this:

“Hi, I’m Karol. My book, #Cursed from @CharlesbridgeYA is about 14 year-old Erica (aka Ricky), who’s newly diagnosed with a painful chronic illness and seriously pissed off about it. It’s funny, frank and full of f-bombs.”

With that in mind, join me in Rickyville where the journey of Erica (aka Ricky and annoyingly Ricky Raccoon to her dad) Bloom is presented in 62 brief chapters with teasing titles that will add to your reading pleasure. I know that may sound semi-snarky but it’s so Ricky-like and snarkiness is one of her secret weapons, well not so secret. Six months prior to the story’s beginning, Ricky was diagnosed with rheumatoid arthritis, an illness of the joints, although she doesn’t immediately share that information with readers. She simply describes the excruciating pain and major inconveniences she has to deal with on a daily basis and that’s a big part of what’s fueling her f-bombs.

The cursing is also what gets Ricky into trouble at school, when she eventually goes. Early on in the novel, written in first person-present tense, Ricky explains how she’s actually been cutting school while hiding it primarily from her father, Dr. Dad (a dentist-doctor), and mother and sister. There’s tons of stuff she can’t deal with at glorious Grant Middle School, one being that as a ninth grader she has to attend a middle school and not a high school. Another reason is that it’s a new school because she’s moved into her divorced dad’s Batch Pad⁠—Ricky gives everything neat nick names including The-Disaster-Formerly-Known-as-my-Parents—in a different part of Philadelphia from her family home. Add to that how difficult it is getting to school and then having to navigate the building when any part of her body can hurt at any given moment with the dagger-like or burning pain usually in her knees, feet and ankles. It doesn’t help matters that when she finally does return to Grant she feels humiliated by the things typical girls her age do “when their biggest worry is looking their best all day.”

There’s a strong cinematic sense conveyed in Cursed because Karol not only hails from Philly where the story is based, but she also has a screenwriting background. It’s easy to picture every place described in the novel. From the city itself and Dr. Bloom’s Batch Pad, the school with its grueling long corridors to the nurse’s office where she spends a lot of time and becomes friends with Oliver. From the waiting room outside the principal’s office, her speech teacher, Mr. Jenkins’ classroom, to the music room where her crush Julio practices, and the doctor’s office where she gets her intravenous medication. Add these strong visuals to the already compelling, engrossing and downright funny storytelling and at once you are totally in Ricky’s head as she tries to cope emotionally and physically with her disability as she approaches age 15.

Once Ricky’s Charade (skipping school) is discovered, she’s got to work her butt off to graduate with her class or risk being held back aka Operation Catch-Up-So-I-Can-Get-The-Hell-Out-of-This-Crap-Ass-School. Helping her accomplish this is the friendship she’s cautiously allowing to blossom with Oliver, a childhood cancer survivor who has such a can-do attitude that some of it has to rub off on Ricky, right? I felt hopeful when Ricky met Oliver. At her old school after having been diagnosed with Juvenile Arthritis and telling her friends “… they all abandoned me. I can’t risk that again.” Oliver is not the abandoning type. But is Ricky?

Some of my favorite scenes in Cursed are the ones where Ricky’s vulnerabilities and strengths are exposed like when I learned how much she dislikes her current arthritis specialist, Dr. Blickstein (aka Dr. Blech-stein) because he never speaks to her and treats her like she’s invisible, choosing instead to relay info to her mom. When she finally decides to change doctors and finds one who’s caring and truly interested in her feelings, I wanted to cheer out loud. Another time, when she comes to the aid of a girl who’s part of a clique, I felt her compassion. She may try hiding that side of herself, but as a reader I knew she had a lot of it just by her observations about the people around her. And wait until her final project, the speech in Mr. Jenkins’ class. That’s all I’ll say or I may start sobbing.

Watching Ricky grow from being a teen who feels cursed, “Like you did something horrible in a past life,” and unable to be comfortable in her own skin to one who is more willing to come to terms with her illness and more open to letting people get close to her is what kept me turning the pages. I mean that’s in addition to the dynamite dialogue, witty asides and meaningful insights into living with arthritis. It was a privilege to get to know Ricky. The changes in her arrive slowly and are sometimes subtle, but they do happen making it all the more worthwhile to be on her team. Stick with Ricky and you’ll be rewarded with this read.

  • Reviewed by Ronna Mandel

 

Click here to read an interview with Karol by author Lee Wind on The Official SCBWI (Society of Children’s Book Writers and Illustrators) Blog.

Click here to read more on “How Stories about Disability Help Create Empathy” at We Need Diverse Books.

Read another YA novel review here.

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