“Would knowing how you were going to die change the way you choose to live?” That question drove coauthors Jessica Koosed Ettingand Alyssa Embree Schwartz to write their YA, Fade into the Bright. From the opening pages, eighteen-year-old Abby’s voice pulled me in: “Obviously, it happened right before Christmas. Because don’t all extremely shitty things happen right around the holidays?” This refers to the news Abby and her older sister Brooke receive from their estranged father. In his brief letter, they discover he’s tested positive for Huntington’s disease. The girls have a 50/50 chance of also carrying the gene for this fatal degenerative brain disorder (described as Alzheimer’s, Parkinson’s, and ALS all rolled into one). Typical onset happens between your thirties and fifties.
Both sisters decide to undergo the required six-month pre-testing genetic counseling. Older sister Brooke tests negative, but Abby’s not so lucky. Suddenly, her plans to attend college—and do pretty much anything else with her life—seem futile; Abby escapes to a remote part of Catalina Island to stay the summer with her aunt. (Though I live in Los Angeles and have visited Catalina, the book’s setting provided me with scenery I had not experienced: “rugged and rustic, completely removed.”)
The story unfolds, alternating between chapters in the present day and those flagged as “before.” I like the designation of “before” because it’s true, when something life-changing happens there is that moment before it happened, then everything else follows. Abby’s ups and downs feel real as she wonders what to do while she waits for symptoms to appear. A job at the beach keeps her busy enough to keep panic mostly at bay, but brings with it the complications of whether she should (or could) tell her new friends about all of this, and what to do when she starts falling for her charismatic and attractive coworker, Ben.
The heart of this story revolves around family and how this disease brings people together, pulls them apart, and how to live with everyone’s results. Sister dynamics can already be complex; add in Huntington’s and a layered, emotional story is born. As Abby says about this disease, “It tells you your ending, but leaves out the important parts, like the how and the when.” Still, the characters choose to move forward and, overall, the book feels inspirational.
Jessica Koosed Etting and Alyssa Embree Schwartz know a thing or two about relationships since they’re probably as close as sisters, having been BFFs for more than twenty years and cowriters for most of that period. Their seamless process works; Fade into the Bright is a beautifully written book about such a difficult topic. Huntington’s is near to Jessica because she has watched her family deal with similar situations to those depicted in the book. I’m thankful these writers brought awareness to this disease and the far-reaching impact of a diagnosis.
Laura Lee Gulledge’s YA graphic novel, The Dark Matter of Mona Starr, opens with Mona Starr’s best friend, Nash, moving to Hawaii. Mona must now tackle high school alone and, though her family cares about her, she feels like the “creative oddball” in their midst. Mona struggles with depression, calling it the “Matter.” Through the help of a therapist and a new girl, Hailey, Mona begins to notice what starts her spiraling downward and how to catch herself before it becomes all-consuming. Chapter titles such as “Notice Your Patterns,” “Break Your Cycles,” and “Replace What You Can’t Erase” reinforce the steps Mona needs to take to cope.
The book presents depression in a realistic manner, showing the back-and-forth struggle that isn’t solved but, rather, managed. While the insightful text tells a compelling story, Gulledge’s art is a showstopper. In a scene where Mona’s overwhelmed by too many choices, her Matter has a hold of her arms and legs, pulling her to the edges of the page while whispering such things as, “You have nothing to offer” and “You are not good for ANYTHING,” inciting our universal search for meaning in our lives.
I’m blown away by the depth in the images (the art is black and white with hints of yellow) throughout the book. After Nash encourages Mona to write about her confusion, the full-page illustration features Mona as a shadowy outline with little Monas picking away (literally) at her brain, digging deep until she reaches her deepest thoughts. Eventually, with the help of friends, therapy, her art, and writing, Mona finds her way toward a hopeful future.
Make this powerful book an addition to your high school’s library and provide a helping hand to someone battling with their own dark matter. The insightful and heartfelt advice is based in part onGulledge’sown struggles.
Click here to order a copy of The Dark Matter of Mona Starr or visit your local indie bookstore. e Disclosure: Good Reads With Ronna is now a Bookshop.org affiliate and will make a small commission from the books sold via this site at no extra cost to you. If you’d like to help support this blog, its team of kidlit reviewers as well as independent bookshops nationwide, please consider purchasing your books from Bookshop.org using our affiliate links above (or below). Thanks!
InWhat I Like About Me, sixteen-year-old Maisie Martin’s teacher requires students to keep a journal jotting down three things they discover about themselves each day of winter break and provide evidence. Maisie’s first entry is easy: her teacher is evil, the evidence is the dreaded journal. After Mum catches Maisie writing “blah blah blah” to fill the daily allotment, Maisie settles down, nicknames her journal “DJ,” and more heartfelt confessions begin.
Maisie frets her parents are divorcing because, for the first time, Maisie’s dad hasn’t accompanied them on their annual vacation retreat. To make up for his absence, Mum lets Maisie bring her along BFF. Anna is everything you want in a girlfriend plus she’s gorgeous—a fact Maisie’s years-long crush, Sebastian, soon notices. He’s brought his annoying pal, Beamer, again. The four teens hang together at the beach, except Maisie’s too body-conscious to wear a bathing suit or get in the ocean. It comes as a surprise to everyone (even Maisie) when Maisie decides to face her fears and enter the local beauty pageant following in the footsteps of a beautifully slim mother and older sister. Figuring she won’t be selected because of her weight, she’s amazed when they not only accept her entry but also want to feature her in an interview. But all is not as it seems.
I like how this book goes beyond typical beach fun delving into complications such as when your BFF and love of your life seem destined to get together, how to deal with being stuck with an annoying sidekick, and the reality of people being unable to see past your size. Maisie vents in her journal: “Imagine having a body you’re always uncomfortable in. Always. That moves when you want it to be still, and makes you want to be still even when you long to move.”
Such heartbreaking moments are offset with heaps of humor. Jenna Guillaume kept me laughing from the book’s first lines. When a bunch of boys go skinny-dipping, Maisie muses, “soon the pool was a veritable sausage soup.” The chapters open with Maisie’s “discoveries” running a gamut of emotions, many of them hilarious. Eventually, journaling leads to self-reflection and Maisie catalogues things she likes about herself.
Books are about characters and Maisie is awesome. I’d gladly follow her on to another book or two. Guillaume has a gift for capturing our fears and seeing a way past them. Family, romance, and friendship all play out in their levels of complexity. Learning how to accept and love yourself are the book’s most powerful messages. Get this YA debut for the teen in your life or for yourself. It’ll make you laugh, but I hope it also makes you pause a moment to consider at least one thing you like about yourself.
Find Jenna Guillaume on Facebook here. Get a discussion guide here. Click herefor an excerpt. Read a Q+A with Jenna Guillaume here.
What an honor to once again be participating in the Sydney Taylor Blog Tour. This year it’s been a delight to interview authorHannah Moskowitz after reading her compelling YA novel (that I could not put down) Sick Kids in Love, an honor award winner in the teen readers category. Find out more about this week of enlightening interviews at theAssociation of Jewish Libraries website and at the official Sydney Taylor site. The full blog tour schedule is posted on the AJL blog and below if you scroll down following the interview.
He’s got a chronic illness Isabel’s never heard of, something she can’t even pronounce. He understands what it means to be sick. He understands her more than her healthy friends. He understands her more than her own father who’s a doctor.
He’s gorgeous, fun, and foul-mouthed. And totally into her.
Isabel has one rule: no dating.
It’s never felt better—
—to consider breaking that rule for him.
AN INTERVIEW WITH HANNAH MOSKOWITZ
Good Reads With Ronna:How does SICK KIDS IN LOVE differ from your previous novels and did anything in particular happen to plant the seed to write this one?
Hannah Moskowitz: SICK KIDS IN LOVE is my first book to feature characters with chronic illnesses, or even really to include characters with chronic illnesses at all, which is ridiculous since it’s such a defining feature of my own life. I really wanted to write something that I felt like was true to the chronic illness experience and that was keeping up with the conversations happening right now in the disability community that I hadn’t really seen reflected in fiction yet. So I wanted to create a positive, realistic, disability-positive love story. It’s a pretty straightforward romance, which was also a first for me. The way I explained it when I started was that I wasn’t reinventing the wheel; I was just giving the wheel to people who hadn’t had it before.
GRWR:February is Jewish Disability Awareness, Acceptance and Inclusion Month. Can you please speak to the relevance of this initiative in terms of your YA novel’s main characters, Isabel (Ibby) Garfinkel who has rheumatoid arthritis and her boyfriend, Sasha (Aleksandr) Sverdlov-Deckler, who has a non-fatal type of Gaucher Disease, and where abled society falls short here and with understanding invisible illness?
HM: Invisible illnesses are so common and so poorly respected in our society, and there are several that are more common in the Ashkenazi Jewish community than in the general population, like Sasha’s Gaucher Disease. So having a month specifically for Jewish disability awareness, acceptance and inclusion is definitely a big deal. Invisible illnesses are misdiagnosed and underdiagnosed all the time, and it’s unfortunately really hard to be taken seriously without having a diagnosis with a name that people recognize as serious. If you have something people don’t know about, like Sasha, people think you’re making it up. If you have something that sounds kind of common and benign, like Isabel, people think you’re making a big deal out of nothing. It’s really rough out there.
GRWR:Could you have written this novel without a Jewish protagonist, and if not, why?
HM: I think I could have. Writing Jewish protagonists is just easier for me, so letting myself stay in that space is one less thing I have to deal with when I’m planning out my characters. So writing a non-Jewish protagonist would have been possible, but a lot more work. And for what!
GRWR:Why did you decide to have Ibby’s family and friends deal with her illness so differently than how Sasha’s family deals with his?
HM: Ibby’s family’s discomfort with chronic illness is what’s familiar to me in my own life, and Sasha’s is kind of the fantasy of what I wish people were like. So I wanted to show both the uncomfortable reality and that we should still have this aspirational ideal even if we’ve been left down. It’s okay to expect that much.
GRWR:Why does Isabel have such a difficult time self-advocating? Is this something you wanted to raise readers’ awareness about?
HM: Because I do! And because honestly, it’s hard to stand up for yourself and tell people you’re valid when they’re constantly telling you you’re not. Being told you don’t deserve things that you thought you need sticks with you, and having to fight through that internalized ableism is a huge part of living with chronic illness.
GRWR:As an #OwnVoices author, how much of yourself have you put into the story in regard to both your Jewish faith and your chronic illness?
HM: I put a ton of myself into this particular book, which I think was what made it such a joy to write. The whole process was easy; I wrote this book over the course of a month for NaNoWriMo 2017, and the version you can read now is very, very close to that first draft. Isabel is a Reform Ashkenazi Jew with autoimmune arthritis. Guess what I am! She even lives on the block in Sunnyside that I used to live on. Nothing that happens to Isabel in the course of the story is autobiographical, but her character certainly is. Though personality-wise I would say I’m more like Sasha.
GRWR: I enjoyed Isabel’s personal arc as she fights the pull to get involved with Sasha because of her dysfunctional family history among other things. When she ultimately succumbs to love—being loved and loving back—it’s powerful, positive and oh so beautiful. Do you think her struggle is one many teens can relate to?
HM: Thank you! I think Isabel’s big struggle is her fear of committing herself fully to something uncertain, and I think that’s a worry that a lot of people, teenagers or adults, can relate to.
GRWR:What gave you the idea to make Ibby the“SICK GIRL” weekly advice columnist at her high school newspaper and then share her questions throughout the novel?
HM: I’ve been asked this before and honestly I wish I could remember, but I … don’t. It was part of the book from the first draft, I know that. A long time ago I was trying to write a book where one of the main characters went around asking people what they would do if it was their last night in New York, so I think it might have stemmed from that. But my memory is too terrible.
GRWR:As your sub-heading says, no one dies in your novel yet I cried in several places because I cared about Ibby and Sasha, their relationship, and felt so much was at stake for this young couple. Did any part make you cry as you wrote it?
HM: I’m not much of a crier, and I don’t think I’ve ever cried while writing something! But I do make playlists for the characters, and sometimes I cry a little bit listening to those and thinking about all their feelings.
GRWR:The voice in your novel was great, as was the dialogue and humor. What part of the novel did you enjoy writing the most? What were some of the most difficult parts?
HM: I always prefer writing dialogue to anything else. My favorite things to write are arguments, and Sasha and Isabel have at least one great one. I hate writing descriptions and world building, but at least this time I got to just talk about a place I knew well.
GRWR:SICK KIDS IN LOVE should be required reading in high school curricula. You’ve succeeded in opening readers’ eyes to the disabled community, how they’re perceived and treated and how they’d like to be treated. Do you think you’ve written all you’d like to say on this topic?
HM: Thanks! I think I did put all I have to say at this time about disability and chronic illness into this book. But who knows if I’ll think of more in the future!
GRWR:What can we expect in your next novel?
HM: Right now I don’t know which of several books my next novel will be, but it’s likely either a very untraditional lesbian romance, a story about a teen mom figuring out her sexuality, or a f/f retelling of “Dirty Dancing.” So … expect lesbians.
BLOG TOUR SCHEDULE
The Sydney Taylor Book Award is showcasing its 2020 gold and silver medalists with a Blog Tour, February 9-13, 2020! Interviews with winning authors and illustrators will appear on a variety of Jewish and kidlit blogs. Interviews will appear on the dates below, and will remain available to read at your own convenience.
Below is the schedule for the 2020 Sydney Taylor Book Award Blog Tour. Please follow the links to visit the hosting blogs on or after their tour dates, and be sure to leave them plenty of comments!
Have a Little Faith in Me, the YA debut from Sonia Hartl, hooked me with its opening line: “If I hadn’t made such a big deal about my virginity, I might not have spent a valuable portion of my summer checking nosebleed tissues for images of Jesus.” Have a Little Faith in Me is a funny, honest YA romance. Soon-to-be-senior CeCe was recently dumped by Ethan, her nice Christian boyfriend, because he must restore his virginal heart. To bridge the religious gap between them, CeCe secretly signs up for the same three-week Jesus camp, knowing their love will conquer all. Her best friend and next-door neighbor, Paul, thinks otherwise so he accompanies CeCe to this “faraway land, a dark place with no Wi-Fi.”
Though CeCe is out of her element, she finds that questions and uncertainty about sex unite her with the other girls. At the same time, CeCe’s relationships with her ex-boyfriend and her best friend take unexpected turns.
Have a Little Faith in Me is ideal for a teen who wants real-world advice about navigating the sexual and emotional aspects of relationships—a book I’ll set aside for our daughter. While scenarios of intense moments not quite going as planned are humorous, the story seriously examines what consent means. I like that LGBT sex is also addressed as a viable option. Reading this book felt like confiding with close friends who don’t hesitate to share intimacies. The bottom line: figure yourself out before you hookup with someone else.
CURSED by Karol Ruth Silverstein (Charlesbridge Teen; $17.99, Ages 12 and up)
I loved Cursed, the debut YA novel by Karol Ruth Silverstein, even before I read it because the cover spoke to me, and was perfect. Now, having finished the book, I can confirm how well this cover works. Its dual-meaning title presented in a bold red printer’s-block-style lettering, the warning on the bottom, along with the emojis capture the entire essence of the story. I think you’ll agree once you’ve read Cursed, too.
When I attended the book launch and heard Karol read from the opening chapter I couldn’t wait to find a chunk of time to finally read the novel undisturbed. In so many ways this is Karol’s story, an #ownvoices novel not only in that Karol authored it, but she has also lived with the chronic illness she writes about honestly and creatively using spot on “sarcasm, and bouts of profanity” that you will sorely miss when the novel ends. To give you an idea of what to expect, Karol recently tweeted this:
“Hi, I’m Karol. My book, #Cursed from @CharlesbridgeYA is about 14 year-old Erica (aka Ricky), who’s newly diagnosed with a painful chronic illness and seriously pissed off about it. It’s funny, frank and full of f-bombs.”
With that in mind, join me in Rickyville where the journey of Erica (aka Ricky and annoyingly Ricky Raccoon to her dad) Bloom is presented in 62 brief chapters with teasing titles that will add to your reading pleasure. I know that may sound semi-snarky but it’s so Ricky-like and snarkiness is one of her secret weapons, well not so secret. Six months prior to the story’s beginning, Ricky was diagnosed with rheumatoid arthritis, an illness of the joints, although she doesn’t immediately share that information with readers. She simply describes the excruciating pain and major inconveniences she has to deal with on a daily basis and that’s a big part of what’s fueling her f-bombs.
The cursing is also what gets Ricky into trouble at school, when she eventually goes. Early on in the novel, written in first person-present tense, Ricky explains how she’s actually been cutting school while hiding it primarily from her father, Dr. Dad (a dentist-doctor), and mother and sister. There’s tons of stuff she can’t deal with at glorious Grant Middle School, one being that as a ninth grader she has to attend a middle school and not a high school. Another reason is that it’s a new school because she’s moved into her divorced dad’s Batch Pad—Ricky gives everything neat nick names including The-Disaster-Formerly-Known-as-my-Parents—in a different part of Philadelphia from her family home. Add to that how difficult it is getting to school and then having to navigate the building when any part of her body can hurt at any given moment with the dagger-like or burning pain usually in her knees, feet and ankles. It doesn’t help matters that when she finally does return to Grant she feels humiliated by the things typical girls her age do “when their biggest worry is looking their best all day.”
There’s a strong cinematic sense conveyed in Cursed because Karol not only hails from Philly where the story is based, but she also has a screenwriting background. It’s easy to picture every place described in the novel. From the city itself and Dr. Bloom’s Batch Pad, the school with its grueling long corridors to the nurse’s office where she spends a lot of time and becomes friends with Oliver. From the waiting room outside the principal’s office, her speech teacher, Mr. Jenkins’ classroom, to the music room where her crush Julio practices, and the doctor’s office where she gets her intravenous medication. Add these strong visuals to the already compelling, engrossing and downright funny storytelling and at once you are totally in Ricky’s head as she tries to cope emotionally and physically with her disability as she approaches age 15.
Once Ricky’s Charade (skipping school) is discovered, she’s got to work her butt off to graduate with her class or risk being held back aka Operation Catch-Up-So-I-Can-Get-The-Hell-Out-of-This-Crap-Ass-School. Helping her accomplish this is the friendship she’s cautiously allowing to blossom with Oliver, a childhood cancer survivor who has such a can-do attitude that some of it has to rub off on Ricky, right? I felt hopeful when Ricky met Oliver. At her old school after having been diagnosed with Juvenile Arthritis and telling her friends “… they all abandoned me. I can’t risk that again.” Oliver is not the abandoning type. But is Ricky?
Some of my favorite scenes in Cursed are the ones where Ricky’s vulnerabilities and strengths are exposed like when I learned how much she dislikes her current arthritis specialist, Dr. Blickstein (aka Dr. Blech-stein) because he never speaks to her and treats her like she’s invisible, choosing instead to relay info to her mom. When she finally decides to change doctors and finds one who’s caring and truly interested in her feelings, I wanted to cheer out loud. Another time, when she comes to the aid of a girl who’s part of a clique, I felt her compassion. She may try hiding that side of herself, but as a reader I knew she had a lot of it just by her observations about the people around her. And wait until her final project, the speech in Mr. Jenkins’ class. That’s all I’ll say or I may start sobbing.
Watching Ricky grow from being a teen who feels cursed, “Like you did something horrible in a past life,” and unable to be comfortable in her own skin to one who is more willing to come to terms with her illness and more open to letting people get close to her is what kept me turning the pages. I mean that’s in addition to the dynamite dialogue, witty asides and meaningful insights into living with arthritis. It was a privilege to get to know Ricky. The changes in her arrive slowly and are sometimes subtle, but they do happen making it all the more worthwhile to be on her team. Stick with Ricky and you’ll be rewarded with this read.
Reviewed by Ronna Mandel
Click here to read an interview with Karol by author Lee Wind on The Official SCBWI (Society of Children’s Book Writers and Illustrators) Blog.
Click here to read more on “How Stories about Disability Help Create Empathy” at We Need Diverse Books.
In WHERE I END AND YOU BEGIN by Preston Norton, seventeen year-old Ezra Slevin desperately wants to take Imogene Klutz to the prom. The only problem is he’s a neurotic, insomniac who is too shy to even talk to her, and Imogene’s best friend hates him, but has a crush on his best friend who hates her. Ezra’s best friend has inside information where Imogene will be at the time of the solar eclipse, the most important event in their town. The unimaginable takes place during the eclipse – Ezra and Imogene’s best friend, Wynonna, body swap, unleashing a series of humorous circumstances.
Ezra and Wynonna are exact opposites but both suffer from self-loathing. Ezra says, “I didn’t feel masculine. I didn’t feel like a fucking human being.” His self-loathing results in his never standing up for himself. Wynonna is aggressive, angry, and dyslexic.
The author thoroughly explores every angle of sexual identity against the background of Hamlet’s Twelfth Night, “exploring the line between love and suffering, the ambiguity of gender, and the folly of ambition.” Norton states, “The important thing isn’t the word or the label. The important thing is you.”
I often found myself laughing, and loved Norton’s imagery. “Slowly, Imogene’s eyes widened like a pair of flowers blooming in a fast-motion time lapse.”
This is a humorous story about male and female body swapping which deals with serious topics of self-loathing, anger, forgiveness, sexual identity, and friendship, which leaves the reader with a sense of hope and possibility of transcendence.
Readers who enjoy books like EVERY DAY by David Levithan should definitely add WHERE I END AND YOU BEGIN to their TBR list.
Reviewed by Guest Blogger, Joanne Rode e About the reviewer: Joanne Rode is a retired librarian living in Los Angeles, California. Twenty years ago she started working as a children’s librarian while living on Maui. The births of her grandchildren drew her back to the mainland, where she continued her career as a librarian in Orange County, then later in Los Angeles. She now enjoys using her free time to write. Contact Joanne at joanneorode.com
★Starred Review – Publishers Weekly -A New York Times bestseller -Kids’ Indie Next List Pick (Summer 2015)
Sarah Dessen’s many fans won’t need to be cajoled past the slow start of her new YA novel, SAINT ANYTHING (May 2015, Viking; $19.99). New Dessen readers, however, should know that the beginning is there to provide contrast, like the black-and-white opening of the Wizard of Oz movie. The detached vibe reflects how main character Sydney Stanford’s home life feels until she meets the Chatham family. The Chathams and their restaurant Seaside Pizza are full of warmth, acceptance, and music, and the pace of the book picks up as soon as the family appears. Layla Chatham becomes Sydney’s new best friend. Since she has a big sister who is a skating-star-turned-drug-addict, Layla understands what it’s like for Sydney now that her brother Peyton is in prison. Peyton was the Stanford family’s “Golden Child” before he drove drunk and crashed into a pedestrian.
Layla invites Sydney to join her group of friends, which includes her brother Mac. They all hang out at Seaside after school, eating pizza and practicing retro pop covers for an upcoming band showcase. Sydney feels herself falling for Mac, despite Layla’s warning that she can’t abide her friends dating her brother. But how can you draw a line between friendship and romance when you meet the right guy? The times Sydney and Mac find to be alone — usually while delivering pizza in Mac’s not-so-reliable old truck — are some of my favorite moments in the book. I enjoyed reliving the sweet excitement of a potential new relationship. I also related to Sydney’s discomfort when her brother’s friend keeps popping up to hang out with her, especially when her parents aren’t around. It’s hard to ask for help when an older guy creeps you out for reasons you can’t name and therefore can’t report.
The heart of the book for me centers on Sydney’s feeling of guilt about the young teen, David Ibarra, her brother Peyton injured. Sydney learns everything she can about David’s life before and after the accident. A friendly, caring guy nicknamed “Brother,” he’s going to be in a wheelchair for life, and Sydney feels like she’s the only person in the family wanting to make amends. Her mother, Julie, only thinks about Peyton and how the aftermath of the accident affects him. As a parent, I laughed out loud as Julie, stuck in helicopter-parent mode, tries to organize families of Peyton’s fellow prisoners as if she were the president of a prison PTA. I was touched, though, when Sydney and Peyton start talking on the phone, finally getting to know each other as individuals outside of their family roles, ready to take responsibility for their own lives.
SAINT ANYTHING is peopled with teens who feel real, none of them perfect and all of them passionate about something, whether music, school, or French fries. The book is a comfortable place to hang out even while facing uncomfortable situations with the more caricature-like adults. I recommend this book to fellow fans of quiet YA, those of us who’d like to peek inside a house when delivering a pizza, trying to figure out what life’s like behind that half-open door.