Juvenile Arthritis

CURSED
by Karol Ruth Silverstein
(Charlesbridge Teen; $17.99, Ages 12 and up)

 

 

I loved Cursed, the debut YA novel by Karol Ruth Silverstein, even before I read it because the cover spoke to me, and was perfect. Now, having finished the book, I can confirm how well this cover works. Its dual-meaning title presented in a bold red printer’s-block-style lettering, the warning on the bottom, along with the emojis capture the entire essence of the story. I think you’ll agree once you’ve read Cursed, too.

When I attended the book launch and heard Karol read from the opening chapter I couldn’t wait to find a chunk of time to finally read the novel undisturbed. In so many ways this is Karol’s story, an #ownvoices novel not only in that Karol authored it, but she has also lived with the chronic illness she writes about honestly and creatively using spot on “sarcasm, and bouts of profanity” that you will sorely miss when the novel ends. To give you an idea of what to expect, Karol recently tweeted this:

“Hi, I’m Karol. My book, #Cursed from @CharlesbridgeYA is about 14 year-old Erica (aka Ricky), who’s newly diagnosed with a painful chronic illness and seriously pissed off about it. It’s funny, frank and full of f-bombs.”

With that in mind, join me in Rickyville where the journey of Erica (aka Ricky and annoyingly Ricky Raccoon to her dad) Bloom is presented in 62 brief chapters with teasing titles that will add to your reading pleasure. I know that may sound semi-snarky but it’s so Ricky-like and snarkiness is one of her secret weapons, well not so secret. Six months prior to the story’s beginning, Ricky was diagnosed with rheumatoid arthritis, an illness of the joints, although she doesn’t immediately share that information with readers. She simply describes the excruciating pain and major inconveniences she has to deal with on a daily basis and that’s a big part of what’s fueling her f-bombs.

The cursing is also what gets Ricky into trouble at school, when she eventually goes. Early on in the novel, written in first person-present tense, Ricky explains how she’s actually been cutting school while hiding it primarily from her father, Dr. Dad (a dentist-doctor), and mother and sister. There’s tons of stuff she can’t deal with at glorious Grant Middle School, one being that as a ninth grader she has to attend a middle school and not a high school. Another reason is that it’s a new school because she’s moved into her divorced dad’s Batch Pad⁠—Ricky gives everything neat nick names including The-Disaster-Formerly-Known-as-my-Parents—in a different part of Philadelphia from her family home. Add to that how difficult it is getting to school and then having to navigate the building when any part of her body can hurt at any given moment with the dagger-like or burning pain usually in her knees, feet and ankles. It doesn’t help matters that when she finally does return to Grant she feels humiliated by the things typical girls her age do “when their biggest worry is looking their best all day.”

There’s a strong cinematic sense conveyed in Cursed because Karol not only hails from Philly where the story is based, but she also has a screenwriting background. It’s easy to picture every place described in the novel. From the city itself and Dr. Bloom’s Batch Pad, the school with its grueling long corridors to the nurse’s office where she spends a lot of time and becomes friends with Oliver. From the waiting room outside the principal’s office, her speech teacher, Mr. Jenkins’ classroom, to the music room where her crush Julio practices, and the doctor’s office where she gets her intravenous medication. Add these strong visuals to the already compelling, engrossing and downright funny storytelling and at once you are totally in Ricky’s head as she tries to cope emotionally and physically with her disability as she approaches age 15.

Once Ricky’s Charade (skipping school) is discovered, she’s got to work her butt off to graduate with her class or risk being held back aka Operation Catch-Up-So-I-Can-Get-The-Hell-Out-of-This-Crap-Ass-School. Helping her accomplish this is the friendship she’s cautiously allowing to blossom with Oliver, a childhood cancer survivor who has such a can-do attitude that some of it has to rub off on Ricky, right? I felt hopeful when Ricky met Oliver. At her old school after having been diagnosed with Juvenile Arthritis and telling her friends “… they all abandoned me. I can’t risk that again.” Oliver is not the abandoning type. But is Ricky?

Some of my favorite scenes in Cursed are the ones where Ricky’s vulnerabilities and strengths are exposed like when I learned how much she dislikes her current arthritis specialist, Dr. Blickstein (aka Dr. Blech-stein) because he never speaks to her and treats her like she’s invisible, choosing instead to relay info to her mom. When she finally decides to change doctors and finds one who’s caring and truly interested in her feelings, I wanted to cheer out loud. Another time, when she comes to the aid of a girl who’s part of a clique, I felt her compassion. She may try hiding that side of herself, but as a reader I knew she had a lot of it just by her observations about the people around her. And wait until her final project, the speech in Mr. Jenkins’ class. That’s all I’ll say or I may start sobbing.

Watching Ricky grow from being a teen who feels cursed, “Like you did something horrible in a past life,” and unable to be comfortable in her own skin to one who is more willing to come to terms with her illness and more open to letting people get close to her is what kept me turning the pages. I mean that’s in addition to the dynamite dialogue, witty asides and meaningful insights into living with arthritis. It was a privilege to get to know Ricky. The changes in her arrive slowly and are sometimes subtle, but they do happen making it all the more worthwhile to be on her team. Stick with Ricky and you’ll be rewarded with this read.

• Reviewed by Ronna Mandel

 

Click here to read an interview with Karol by author Lee Wind on The Official SCBWI (Society of Children’s Book Writers and Illustrators) Blog.

Click here to read more on “How Stories about Disability Help Create Empathy” at We Need Diverse Books.

Read another YA novel review here.