ONCE MORE WITH CHUTZPAH Written by Haley Neil (Bloomsbury; $17.99; Ages 12 and up)…
Jessica Koosed Etting
Alyssa Embree Schwartz
(Delacorte Press; $17.99, Ages 12 and up)
“Would knowing how you were going to die change the way you choose to live?” That question drove coauthors Jessica Koosed Etting and Alyssa Embree Schwartz to write their YA, Fade into the Bright. From the opening pages, eighteen-year-old Abby’s voice pulled me in: “Obviously, it happened right before Christmas. Because don’t all extremely shitty things happen right around the holidays?” This refers to the news Abby and her older sister Brooke receive from their estranged father. In his brief letter, they discover he’s tested positive for Huntington’s disease. The girls have a 50/50 chance of also carrying the gene for this fatal degenerative brain disorder (described as Alzheimer’s, Parkinson’s, and ALS all rolled into one). Typical onset happens between your thirties and fifties.
Both sisters decide to undergo the required six-month pre-testing genetic counseling. Older sister Brooke tests negative, but Abby’s not so lucky. Suddenly, her plans to attend college—and do pretty much anything else with her life—seem futile; Abby escapes to a remote part of Catalina Island to stay the summer with her aunt. (Though I live in Los Angeles and have visited Catalina, the book’s setting provided me with scenery I had not experienced: “rugged and rustic, completely removed.”)
The story unfolds, alternating between chapters in the present day and those flagged as “before.” I like the designation of “before” because it’s true, when something life-changing happens there is that moment before it happened, then everything else follows. Abby’s ups and downs feel real as she wonders what to do while she waits for symptoms to appear. A job at the beach keeps her busy enough to keep panic mostly at bay, but brings with it the complications of whether she should (or could) tell her new friends about all of this, and what to do when she starts falling for her charismatic and attractive coworker, Ben.
The heart of this story revolves around family and how this disease brings people together, pulls them apart, and how to live with everyone’s results. Sister dynamics can already be complex; add in Huntington’s and a layered, emotional story is born. As Abby says about this disease, “It tells you your ending, but leaves out the important parts, like the how and the when.” Still, the characters choose to move forward and, overall, the book feels inspirational.
Jessica Koosed Etting and Alyssa Embree Schwartz know a thing or two about relationships since they’re probably as close as sisters, having been BFFs for more than twenty years and cowriters for most of that period. Their seamless process works; Fade into the Bright is a beautifully written book about such a difficult topic. Huntington’s is near to Jessica because she has watched her family deal with similar situations to those depicted in the book. I’m thankful these writers brought awareness to this disease and the far-reaching impact of a diagnosis.
- Reviewed by Christine Van Zandt (www.ChristineVanZandt.com), Write for Success
(www.Write-for-Success.com), @ChristineVZ and @WFSediting, Christine@Write-for-Success.com